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Johan Bové

It’s Childhood Cancer Awareness Month

Imagine a world where the 1 in 5 kids who don't survive today could grow up and live their dreams. Your donation can make that a reality for more kids than you imagine, who depend on lifesaving research to survive. Every cents counts.


https://www.stbaldricks.org/

Johan Bové

Johan Bové

Johan Bové

St. Baldrick's Foundation | Organization Profile | Bonfire

St. Baldrick's Foundation

Conquer childhood cancers
 
 

St. Baldrick's Foundation began in 2000 as a challenge between friends and has since grown into the world's largest volunteer-powered, donor centered fundraising program for childhood cancer research. The Foundation now funds more in childhood cancer research grants than any organization except the U.S. government. Its signature head-shaving events are coordinated worldwide, where volunteers get bald to stand in solidarity with kids with cancer and raise money to support lifesaving research. Since its start, nearly 450,000 shavees, including over 59,000 women, have shaved their heads at more than 10,000 head-shaving events in 25 countries and 50 U.S. states. St. Baldrick's has committed more than $200 million since 2005 to fund local institutions as well as cooperative research on a national scale to help doctors work together to develop the best treatments for all children with cancer.

 

Johan Bové

It is really saddening to see all that financial potential disappear into thin air (or black holes), when it could have been used for so much good - cancer / medicine research is extremely expensive and could use any financial backing possible - yet some people find it more important to virtually own some ugly digital image instead. And worse, then they lose even that to scammers.

Johan Bové

Johan Bové

If all the computing power and effort currently put into mining and handling cryptocurrencies would have been used for science instead, through eg. Folding@home, we probably could have had a cure for cancer by now.

Johan Bové

Shave The Day

Conquer childhood Cancers one Shave at a time

Shick, the razor blade company, teamed up with the St. Baldrick’s Foundation to create "Shave The Day", an epic head-shaving video game.

To make a donation to St. Baldrick’s Foundation, simply play Shave The Day! At the end of the game, your points will turn into a real donation to help fund childhood cancer research. Schick Xtreme® has pledged to donate on behalf of players up to $250,000. Once that goal is met, we encourage you to continue playing and donating on your own within the game.

Johan Bové

I got my head shaved to raise funding for childhood cancer research.

I got my head shaved to raise funding for childhood cancer research.

Helping the St.Baldricks's Foundation find the funds so they can finance scientists, hospitals and universities around the World so kids with childhood cancers get the best support possible.

There is more information on bald.johanbove.info and stbaldricks.org.

Johan Bové

I've met my own fundraising goal, but my team still can use your support!

1 min read

To all my friends, thank you for supporting my head-shaving fundraiser for St. Baldrick's Foundation. I am amazed to share that I have already smashed my goal, with $1045 raised for childhood cancer research.

While I have met my goal, we are still $12000 short for the overall event goal of raising $50000, so I have increased my goal to $1500 – so if there is anyone still interested in helping, here is the link again 😃

https://bald.johanbove.info

We'll be going live on Facebook during the event, set for this Saturday at 18:00. @Jeff Neu, whose superhero 5-year old son Jake just beat cancer and rang the bell in June this year after three and a half years of treatment, is hosting the event. Many people will shave their heads and some will share their stories, and you are all invited to join if you are curious and have time.

This is the first time I do anything like this. While I am still a little nervous about shaving my head, I know it will be fun and I am grateful and humbled by the support you've all given me!

Johan Bové

Johan Bové

Why I am shaving my head bald on September 26th 2020

I am supporting the fight against childhood cancer!

2 min read

Me before the shave

I am shaving my head to raise money for childhood cancer research. Sponsor me to help me reach my goal of a €1500.

I will shave my head to raise money for childhood cancer research. Sponsor me to help reach my goal of €1500.

Childhood cancer strikes more than children alone, it attacks whole families too. Did you know that almost half a million children will get cancer each year, and that in Europe and the US, one child out of 5 will die within 5 years from diagnosis? Did you know that there is little funding for childhood cancer research, with many treatment protocols dating 20, 30 or even 50 years? And that these treatment protocols are more intense than the ones for adults, and can last years?

I had no idea. But now that I do know, I want to help, because children can´t fight cancer alone. My fundraiser is in support of the St. Baldrick's Foundation, one of the most important childhood cancer research charities worldwide.

When you support them, you help fund critical trials and grants in more than 377 institutions in 30 countries.

This Saturday afternoon I will take part of a live event together with other families that will share their personal experiences with childhood cancer.

If you want, you can follow me live as I am getting my head shaved.

I am a bit nervous, but I know it´s going to be fun!

Please sponsor me to help me reach my goal of €1500 by this Saturday.

Visit this URL to learn more: https://bald.johanbove.info

Johan Bové

Childhood Cancer Advocate's Virtual Event

I'm shaving my head with St. Baldrick's to raise money and help conquer kids' cancers! Every 2 minutes a child is diagnosed with cancer worldwide, and 1 in 5 of those in the U.S. will not survive. I refuse to accept this reality, so I’ve decided to fundraise for lifesaving research to find cures and better treatments for kids. Now I need your support! Your donation can fund research to help kids survive and thrive. Join me today and let’s #DFYchildhoodCancers together.

Location: https://www.stbaldricks.org/participants/mypage/1073209/2020

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Time Zone: Europe/Berlin (GMT +02:00)

Childhood Cancer Advocate's Virtual Event

About a year ago, a handful of colleagues got together. At first glance, it wouldn't appear that we had much in common. We were all different ages, came from different backgrounds, held different jobs. But we had one thing in common: the desire to save a child from cancer. 
 
Our team reflects the impact that cancer can have on anyone. One member's son just successfully completed 3.5 years of chemotherapy. Another member's nephew tragically lost his battle with cancer. And another member beat cancer herself. 
 
As Childhood Cancer Advocates, we are united in our desire of health for all children with cancer, but they cannot fight it on their own. We are inspired by our heroes and want to end childhood cancer, because their fight is our fight. 
 
We are part of the St. Baldrick's organization because we want to support the critical research they advance all over the world. When you give to St. Baldrick's, you support more than 377 institutions that treat children in 30 countries. 
 
Seeing a child fight cancer changes you forever. That's been the case for us. We are endlessly inspired by the strength, resilience and joy of our heroes. But no child should have to fight it or lose their lives to it. 
 
This is our opportunity as parents, grandparents, aunts, uncles, neighbors and colleagues, to give these kids something many of them don't have...the chance to grow up.

Johan Bové

I am joining as a shavee in the @StBaldricks ' charity event this year!
This means that on September 26th I will have my head completely shaved. Something I have never done before in my life.

To support me in staying brave and to support families fighting cancer, please visit my campaign page: https://www.stbaldricks.org/participants/mypage/1073209/2020

St. Baldrick is a global organisation that supports multiple childhood cancer projects. Here is the overview of their funding: https://indd.adobe.com/view/109a8f11-8a24-40c1-80ec-369db62e736a

We're live streaming the whole head shaving event by the way!

Johan Bové

Werner Goeman

1 min read

My mom's brother Werner only became 41. He died on December 26, 1995 after a short intense battle with lung cancer. He was a heavy smoker. I remember him mostly as a DJ and a computer wizard. I remember he had boxes full of diskettes filled with early PC games. I wonder now if he posted anything on a BBS at the time or had his own Gopher site or even an early HTML website. I wish he was alive now and could observe how the Internet grew to what it is today and how computing power encreased exponentially. I wish he could be here today so I could share with him what I do a for a living as a Web developer and to be able to share good music. In 1995 I was only 15 years old and was not into PC much yet. Cancer sucks.

Johan Bové

If all the energy, time and effort currently being put into currency would be invested in finding a cure for cancer or resolving the climate crisis, we would have probably been a step ahead in the direction already.

Johan Bové

If all the time, effort and energy currently being put into crypto-currencies in the last couple of years would have been invested instead in finding a solution for climate change or a cure for a type of cancer, we've probably already had some promising results by now. Possibly. Maybe. Hopefully we will get our focus back to what really matters soon.